我们的神经科医生监督推荐十大正规网赌平台的需求, provide medical treatment and direct care to other specialists. 取决于你的诊断, a neurologist may provide treatment with a variety of medications, 包括止痛药, 皮质类固醇和免疫调节剂. A neurologist will manage these treatments and help adjust the dose and minimize side effects.

Physical and occupational therapy are important components of a treatment plan for patients with muscular dystrophy and other neuromuscular disorders. Physical and occupational therapists design exercise programs that include stretching and strengthening exercises to help evaluate and address:

• 挛缩(关节柔韧性下降)
• 弱点
• 需要辅助设备
• Need for splints and orthotics to help with hand or foot function

Rehabilitation therapists are available during the clinic visits to show patients exercises that can be done at home.

Our 肌肉萎缩症协会 (MDA) liaison is actively involved with families and schools to offer support related to social, financial and educational effects of neuromuscular disease. An MDA liaison is available during each clinic visit to discuss MDA services available to you.

The MDA was founded in 1950 to provide medical services and promote research for patients with neuromuscular disease. 在60年代末, The Johns Hopkins Hospital became the site of one of the original clinics associated with the MDA and remains one of the largest hospital-affiliated MDA clinics.

Although muscular dystrophy has always been a focus of the MDA, the association supports people with other neuromuscular diseases. At every visit to the Muscular Dystrophy Center at Johns Hopkins, patients have the opportunity to meet with MDA representatives to learn what services are available to them.

已登记个人, MDA提供支持小组, 夏令营, 青年项目, 交通援助和 许多其他服务.

The support of the MDA has helped make the Muscular Dystrophy Center at Johns Hopkins a place where patients find care for all aspects of their condition. This unique, comprehensive care is rewarding for health care providers, patients and family members.

Our genetic counselors play important role in the care of patients with inherited neuromuscular disorders. 我们的辅导员可以通过以下方式提供帮助:

• Carefully reviewing the history of disease with each family
• Discussing the mechanisms of inheritance to weigh in the value of genetic testing for various family members
• Helping gene carriers understand the health impact of their condition

If a neurologist can’t make a diagnosis based on the symptoms or a presence of a genetic mutation, 可能需要进一步的检测, 这可能包括:

• 肌肉活检 can help determine if weakness is caused by muscular dystrophy, 遗传性疾病, or by other causes of muscle degeneration such as from inflammation or toxic exposure.
• 电诊断试验(EMG)
• 血液测试
• CT or MRI imaging can help detect a tumor of the thymus gland in patients with myasthenia gravis.

People with muscular dystrophy and other neuromuscular disorders often have problems with heart function such as cardiomyopathy and cardiac arrhythmias. Our cardiologists review EKG and echocardiograms to monitor the heart rhythm and heart function.

Muscular dystrophy and other neuromuscular disorders may affect many organ systems throughout the body. Our extended care team has expertise and experience in treating patients with these conditions.

• 听力专家 help assess and treat hearing loss, which can affect patients with FSH dystrophy 
• 眼科医生 帮助视网膜血管病变和其他视力问题 
• 治疗严重的挛缩和脊柱侧凸 整形外科医生
• 位肺脏 帮助改善肺功能和呼吸系统问题